A publication of the National Dissemination Center for Children with Disabilities

A publication of the = National Dissemination Center for Children with Disabilities

<= span lang=3DEN style=3D'font-size:20.0pt;font-family:Arial;color:black;mso-fon= t-kerning: 18.0pt;mso-ansi-language:EN'>New York State Resources

Table of Contents=

State Agencies

Disability Organizations=

Parent Organizations

Other Organizations=

Complete update · 11/2005
Partial update · 7/24/2006

The offices listed on this state sheet are primarily state-level offices. Even if an office is not close to your home, they can usually put you in touch with resources in your community, as well= as provide you with information and assistance about disability issues in your state. If you find that an address or number has changed or is incorrect, please e-mail us at nichcy@aed.org an= d let us know.

= State Agencies and Organizations

Age of Eligibility

Each state sets eligibility ages for services= to children and youth with disabilities. For current information concerning = this state, please contact the office listed under Department of Education: Special Educ= ation.

Unit= ed States Senators
Honorable Hillary Rodham Clinton (D)
476 Russell Senate Office Building
Washington, DC 20510
(202) 224-4451
(202) 228-0282 (Fax)
(202) 224-6821 (TTY)
E-mail Web Form: http= ://clinton.senate.gov/email_form.html
Web: http://clinton.senate.gov

Honorable Charles E. Schumer (D)
313 Hart Senate Office Building
United States Senate
Washington, DC 20510
(202) 224-6542
(202) 228-3027 (Fax)
E-mail Web Form: http://= schumer.senate.gov/webform.html
Web: http://schumer.senate.gov

United States Representatives
To find the contact information for your representative in the House of = the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).

Governor
Honorable George E. Pataki
State Capitol
Albany, NY 12224
(518) 474-8390
E-mail form available on Governor's Web site.
Web: www.state.ny.us/governor

Official State Web Site
Web: www.state.ny.us

State Department of Education: Special Education=
Dr. Rebecca Cort, Deputy Commissioner
Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
Web: www.nysed.gov

State Coordinator for NCLB (No Child Left Behind)
James A. Kadamus, Deputy Commissioner
Elementary, Middle, Secondary and Continuing Education
New York State Education Department
Education Building Annex
89 Washington Avenue, Room 875
Albany, NY 12234
(518) 474-5915
E-mail: jkadamus@mail.nysed.gov<= /a>
Web: www.nysed.gov

Programs for Infants and Toddlers with Disabilities: Ages Birth through = 2
Barbara McTague, Acting Director
Bureau of Early Intervention
New York State Department of Health
Empire State Plaza, Corning Tower Building, Room 287
Albany, NY 12237-0660
(518) 473-7016
(800) 522-5006 ("Growing Up Healthy" 24-Hour Hotline)
(800) 577-2229 (in NYC)
E-mail: blm01@health.state.ny.u= s
Web: www.health.state.ny.us
Programs for Children with Disabilities: Ages 3 through 5
Candy Shyer, Coordinator, Special Education Policy
Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
New York State Education Department
1 Commerce Plaza, Room 1624
Albany, NY 12234
(518) 473-2878
E-mail: cshyer@mail.nysed.gov<= br> Web: www.vesid.nysed.gov/s= pecialed

State Vocational Rehabilitation Agency
Dr. Rebecca Cort, Deputy Commissioner
Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
New York State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
Web: www.nysed.gov

Coordinator for Transition Services
Doris Jamison, Manager
Planning and Research
Office of Vocational and Educational Services for Individuals with Disabili= ties
One Commerce Plaza, Room 1624
Albany, NY 12234
(518) 474-7566; (800) 222-5627
E-mail: djamison@mail.nysed.gov<= /a>
Web: www.vesid.nysed.gov

State Mental Health Agency
Sharon Carpinello, Commissioner
Office of Mental Health
44 Holland Avenue
Albany, NY 12229
(518) 474-4403
E-mail: colejxw@omh.state.ny.us<= /a>
Web: www.omh.state.ny.us

State Mental Health Representative for Children and Youth
David Woodlock, Deputy Commissioner
Children and Families
Office of Mental Health
44 Holland Avenue
Albany, NY 12229
(518) 473-6328
E-mail: cocodjw@omh.state.ny.us<= /a>

State Mental Retardation Program
Thomas Maul, Commissioner
New York State Office of Mental Retardation and Developmental Disabilities<= br> 44 Holland Avenue
Albany, NY 12229
(518) 473-1997
Web: www.omr.state.ny.us

Councils on Developmental Disabilities
Anna F. Lobosco, Ph.D., Deputy Executive Direct= or & DD Program Development Specialist IV
New York State Developmental Disabilities Planning Council (DDPC)
155 Washington Avenue, 2nd Floor
Albany, NY 12210
(518) 486-7505; (800) 395-3372
E-mail: alobosco@ddpc.state.ny= .us
Web: www.ddpc.state.ny.us

Protection and Advocacy Agency
Marcel Chaine, Director
Division of Protection and Advocacy Program Administration
New York State Commission on Quality of Care and Advocacy for Persons with = Disabilities
401 State Street
Schenectady, NY 12305-2397
(518) 388-2892; (800) 624-4143
E-mail: marcel.chaine@c= qcapd.state.ny.us
Web: www.cqcapd.state.ny.us
Gary O'Brien, Commissioner
New York State Commission on Quality of Care and Advocacy for Persons with Disabilities
401 State Street
Schenectady, NY 12305
(518) 388-2855
(800) 522-4369 (V/TTY/Spanish, in NY only)
E-mail: allyson.belet= ti@cqcapd.state.ny.us
Web: www.oapwd.org

Client Assistance Program
Michael Peluso, CAP Director
New York State Commission on Quality of Care
401 State Street
Schenectady, NY 12305-2397
(518) 388-2892; (800) 624-4143
E-mail: michaelp@cqc.state.ny.u= s
Web: www.cqc.state.ny.us

Programs for Children with Special Health Care Needs
Susan Slade, Director, Medical Home Unit
Children with Special Health Care Needs Program
New York State Department of Health
ESP-Corning Tower Building, Room 208
Albany, NY 12237-0618
(518) 474-2001
E-mail: sjs11@health.state.ny.u= s
Web: www.health.state.ny.us
State CHIP Program
(health care for low-income uninsured children)
Child Health Plus
New York State Health Department
Box 2000
Albany, NY 12220
(800) 698-4543; (877) 898-5849 (TTY)
Web: www.= health.state.ny.us/nysdoh/chplus/index.htm

Programs for Children and Youth who are Blind or Visually Impaired, or Deaf-Blind
Brian S. Daniels, Acting Associate Commissioner
Commission for the Blind and Visually Handicapped
Office of Children and Family Services
Capital View Office Park
52 Washington Street, Room 201, South Building
Rensselaer, NY 12144-2796
(518) 474-6812
E-mail: brian.daniels@dfa.= state.ny.us
Web: www.dfa.state.ny.us/cbvh

Programs for Children and Youth who are Deaf or Hard of Hearing
Dorothy Steele, Coordinator, Deaf Services
Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
One Commerce Plaza, Room 1623
Albany, NY 12234
(518) 474-5652 (V); (518) 486-3773 (TTY)
(800) 222-5627 (V/TTY)
E-mail: dsteele@mail.nysed.gov
Web: www.vesid.nysed.gov/

Telecommunications Relay Services for Individuals who are Deaf, Hard of Hearing, or with Speech Impairments
(800) 421-1220 (V)
(800) 662-1220 (TTY); 711 (TTY)
(877) 662-4234 (Speech to Speech)

Regional ADA & IT Technical Assistance Center
Andrea Haenlin-Mott, Director
Northeast ADA & IT Center
Cornell University
331 Ives Hall
Ithaca, NY 14853
(607) 255-6686 (V/TTY/Spanish); (800) 949-4232 (V/TTY/Spanish)
E-mail: northeastada@cornell.ed= u
Web: www.northeastada.org

University Centers for Excellence in Developmental Disabilities
Dr. Steven Wolf, Director
Developmental Disabilities Center
St. Lukes - Roosevelt Hospital Center
1000 10th Avenue
New York, NY 10019
(212) 523-6230

Ansley Bacon, Ph.D., President/CEO
Westchester Insitute for Human Development
325 Cedarwood Hall
Valhalla, NY 10595-1689
(914) 493-8204
E-mail: ABacon@wihd.org
Web: www.wihd.org

Herbert J. Cohen, M.D., Director
University Center for Excellence in Developmental Disabilities Education, Research and Service
Rose F. Kennedy Center
Albert Einstein College of Medicine/Yeshiva University
1410 Pelham Parkway South
Bronx, NY 10461
(718) 430-8522
E-mail: hcohen@aecom.yu.edu

Dr. Philip Davidson, Director
Strong Center for Developmental Disabilities
601 Elmwood Avenue
P.O. Box 671
Rochester, NY 14642
(585) 275-0355
E-mail: phil_davidson@u= rmc.rochester.edu
Web: www.urmc.rochest= er.edu/strong/scdd

Technology-Related Assistance
Lisa Rosano-Kaczkowski, Project Director
New York State TRAID Project
New York State Commission on Quality of Care and Advocacy for Persons with Disabilities
401 State Street
Schenectady, NY 12305
(518) 474-2825 (V); (518) 473-4231 (TTY)
(800) 522-4369 (V/TTY/Spanish, in NY only)
E-mail: lisa.rosano@cqcap= d.state.ny.us
Web: www.cqcapd.state.ny.us
State Mediation System
Elaine Gervais, Associate in Special Education<= br> Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
1 Commerce Plaza, Room 1623
99 Washington Avenue
Albany, NY 12234
(518) 486-7462
E-mail: egervais@mail.nysed.gov<= /a>
Web: www.vesid.nysed.gov/lsn=

Special Format Books for Children and Youth Ages 3-19
(Serving upstate New York)
Jane Somers, Director
Sharon B. Phillips, School and Youth Services Librarian
New York State Talking Book & Braille Library
New York State Library
Cultural Education Center, Empire State Plaza
Albany, NY 12230
(518) 474-5935; (800) 342-3688
E-mail: tbblkids@mail.nysed.gov<= /a> (school/youth services)
E-mail: tbbl@mail.nysed.gov (adu= lt services)
Web: www.nysl.nysed.gov/talk= .htm

(Serving New York City and Long Island)
Robert McBrien, Head Librarian
Andrew Heiskell Library for the Blind & Physically Handicapped
New York Public Library
40 West 20th Street
New York, NY 10011
(212) 206-5400; (212) 206-5425 (24 hour Voicemail)
E-mail: ahlbph@nypl.org
Web: http://talkingbooks.nypl.org<= /a>

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= Disability-Specific Organizations

Atte= ntion Deficit Disorder<= br> To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543<= br> Pottstown, PA 19464
(484) 945-2101
Web: www.add.org

Autism
To identify an au= tism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org
Blind/Visual Impairments
Regina Genwright, Director of Information Cente= r
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (212) 502-7662 (TTY)
E-mail: afbinfo@afb.org
Web: www.afb.org

Brain Injury
Judith Avner, Executive Director
Brain Injury Association of New York State
10 Colvin Avenue
Albany, NY 12206
(518) 459-7911; (800) 228-8201 (in NY)
E-mail: info@bianys.org
Web: www.bianys.org

Cerebral Palsy
Susan Constantino, Executive Director
Cerebral Palsy Associations of New York State
330 W. 34th Street
New York, NY 10001
(212) 947-5770, ext. 201
E-mail: nysucpa@aol.com
Web: www.cerebralpalsynys.org

Epilepsy
Richard Daly, Executive Director
Epilepsy Foundation of Long Island
506 Stewart Avenue
Garden City, NY 11530
(516) 739-7733
E-mail: rdaly@epil.org
Web: www.efli.org

Tara Powers, President
Epilepsy Foundation New York City
305 7th Avenue, 12th Floor, Suite 1202
New York, NY 10001
(212) 633-2930
E-mail: tara@epilepsynyc.org
Web: www.efnyc.org

Learning Disabilities
Michael Helman, President
Learning Disabilities Association of New York State
1202 Troy-Schenectady Road, Building 1
Latham, NY 12110
(518) 608-8992
E-mail: statelda@ldanys.org
Web: www.ldanys.org

Mental Health
Glenn Liebman, CEO
Mental Health Association of New York State
194 Washington Avenue, Suite 415
Albany, NY 12210
(518) 434-0439; (800) 766-6177
E-mail: info@mhanys.org
Web: www.mhanys.org

Michael Silverberg, President
National Alliance for the Mentally Ill - New York State
260 Washington Avenue
Albany, NY 12210-1312
(518) 462-2000; (800) 950-3228
E-mail: info@naminys.org
Web: www.naminys.org

Paige Macdonald, Executive Director
Families Together in New York State, Inc.
737 Madison Avenue
Albany, NY 12208
(518) 432-0333; (888) 326-8644 (in NY)
E-mail: info@ftnys.org
Web: www.ftnys.org

Mental Retardation and Related Developmental Disabilities
Marc Brandt, Executive Director
NYSARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
(518) 439-8311; (800) 724-2094
E-mail: brandtm@nysarc.org
Web: www.nysarc.org

Speech and Hearing
Tricia Savoca, Executive Assistant
New York State Speech-Language-Hearing Association, Inc.
1 Northway Lane
Latham, NY 12110
(518) 786-0947
E-mail: info@nysslha.org
Web: www.nysslha.org

Spina Bifida
Vanessa and Kevin Chamberlain, Co-Presidents
Spina Bifida Association: Albany/Capital Distri= ct
109 Spring Road
Scotia, NY 12302
(518) 399-9151
E-mail: SBAALBANY102@aol.com
Web: www.SBAAlbany.org

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= Organizations Especially for Parents

Pare= nt Training and Information Center (PTI)
Paul Shew, Executive Director
The Advocacy Center
590 South Avenue
Rochester, NY 14620
(585) 546-1700; (800) 650-4967 (in NY)
E-mail: info@advocacycenter.com<= /a>
Web: www.advocacycenter.com
Jill Chaifetz, Executive Director
Advocates for Children of New York (New York City)
151 W. 30th Street, 5th Floor
New York, NY 10001
(212) 947-9779
E-mail: jchaifetz@adv= ocatesforchildren.org
Web: www.advocatesforchildr= en.org
Web: www.insideschools.org

Karen Thoreson Schlesinger, Executive Director<= br> Resources for Children with Special Needs, Inc.
116 E. 16th Street, 5th Floor
New York, NY 10003
(212) 677-4650
E-mail: info@resourcesnyc.org<= br> Web: www.resourcesnyc.org

Myrta Cuadra-Lash, Executive Director
Sinergia/Metropolitan Parent Center
134 W. 29th Street, 4th Floor
New York, NY 10001
(212) 643-2840
E-mail: information@sinergian= y.org
Web: www.sinergiany.org

Community Parent Resource Center
(serving Brooklyn, NY)
Lourdes Rivera-Putz, Program Director
United We Stand of New York
91 Harrison Avenue
Brooklyn, NY 11206
(718) 302-4313/4314
E-mail: uwsofny@aol.com
Web: www.taalliance.org/pti= s/uws/

Partners in Policymaking
Joyce Steel, Program Coordinator
New York State Partners in Policymaking
590 South Avenue
Rochester, NY 14620
(585) 546-1700, ext. 234
E-mail: steel@advocacycenter.co= m
Web: www.advocacycenter.com
Parent-To-Parent
Janice Fitzgerald, Executive Director
Parent to Parent of New York State
P.O. Box 1296
Tupper Lake, NY 12986
(518) 359-3006; (866) 727-6970
E-mail: p2pny@adelphia.net
Web: www.parenttoparentnys.org=

Parent Teacher Association (PTA)
Maria DeWald, President
New York State Congress of Parents and Teachers, Inc.
One Wembley Court
Albany, NY 12205-3830
(518) 452-8808; (877) 5NYSPTA
E-mail: office@nyspta.org
Web: www.nyspta.org

Other Parent Organization
(Information about resources serving children birth to 5 and their famil= ies)
Elaine Gervais, Associate in Special Education<= br> Early Childhood Direction Centers
Office of Vocational and Educational Services for Individuals with Disabili= ties (VESID)
One Commerce Plaza, Room 1623
99 Washington Avenue
Albany, NY 12234
(518) 486-7462
E-mail: egervais@mail.nysed.gov<= /a>
Web: www.vesid.nysed.gov

(Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins countie= s)
The Family Resource Network, Inc
46 Oneida Street
Oneonta, New York 13820
(607) 432-0001; (800) 305-8814
E-mail: familyrn@dmcom.net
Web: www.familyrn.org

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= Other Disability Organizations

Christi= ne McMahon, Chief Operating Officer
Easter Seals New York
29 W. 36th Street, 4th Floor, Room 404
New York, NY 10018
(518) 244-6053; (800) 727-8785 (in NY)
E-mail: essofny@aol.com
Web: www.ny.easter-seals.org=

MENTOR ABI Group - New Jersey
Rehabilitative and Support Services for Persons with Acquired Brain Injury<= br> 505 S. Lenola Road
Blason Office Plaza II, Suite 217
Moorestown, NJ 08057
(856) 235-5505
Web: http://nj.t= hementornetwork.com/state/index.asp

Caroline Alterio, President
New York State Occupational Therapy Association
119 Washington Avenue, 2nd Floor
Albany, NY 12210
(518) 462-3717
E-mail: info@nysota.org
Web: www.nysota.org

Dr. Bebe Bernstein, Director
VSA arts of New York City
18-05 215 Street, Suite 15N
Bayside, NY 11360
(718) 225-6305 (V/TTY)
E-mail: Bbvsanyc@msn.com

Joseph O'Connell, Executive Director
Family Empowerment Council, Inc.
225 Dolson Avenue, Suite 403
Middletown, NY 10940
(845) 343-8100
E-mail: joconnell@family= empowerment.org
Web: www.familyempowerment.org=

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contac= t:
National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(202) 207-0334 (V); (202) 207-0340 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

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This information is copyright free.
Readers are encouraged to copy and share it, but please credit the National Dissemination Cen= ter for Children with Disabilities (NICHCY).

NICHCY State Resources are listings of selected state-wide organizations that can refer people to organizations in their area. We up= date our state resources continuously; however, the addresses and telephone numbers of these selected groups are constantly changing.

If you f= ind that an address or number has changed or is incorrect, please e-mail us a= t = nichcy@aed.org and let us know.

Publication of this document is made possible through a Cooperative Agreement between the Academy for Educational Development and= the Office of Special Education Programs of the U.S. Department of Education.= The contents of this document do not necessarily reflect the views or policie= s of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government.=

NICHCY
P.O. Box 1492=
Washington, DC 20013
(800) 695-0285 · v/tty
(202) 884-8441 · fax
e-mail: nichcy@aed.org
web: www.nichcy.org

NICHCY > State Resources : New York